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Rett New Zealand

2007 Conference Videos

We are finally able to make available the videos prepared at the 2007 Rett NZ conference, Empowerment 2007. Click here to visit the page displaying the six videos.

Welcome

This website provides information and support for families affected by Rett syndrome.

You will find here information about the New Zealand Rett Syndrome Association, a brief description of Rett syndrome, links to current researchand links to other useful sites. We have also added a page for personal stories and other contributions for families to share their experiences.

Forums

Join us at our forums and share your thoughts, advice and worries. You can find the forums here. For more information about the forums and how to use them, go to this page.

Send us an e-mail

Do you have any comments or questions about Rett syndrome? Please send us an e-mail at rett.info@nzord.org.nz.

Our sponsors

Deane Endowment Trust
Hayley Brown 
Tepuke Citizens Group 
 

Happy news

Alysha now has a little brother, Luca Mark Pakes.

Our ambassadors

We highlight the work that our ambassadors Mike McRoberts, Dr Mike Sullivan and Anna Stanley are doing for Rett NZ and express our gratitude for their work on the our ambassadors page.

Conference videos

We are finally able to make available the videos prepared at the Empowerment 2007 conference.

New research into benefits of stimulation

A study has found that mental and physical exercise improves coordination and movement. See the Current Research News section for more details.

New family story

The Scene newspaper has written a story about Amy.

New research on the Rett gene

A study has found that the the MECP2 gene linked to Rett syndrome is more complex than originally believed. See the Current Research News section for more deails.

Conference material

We have added photos, speakers' bios and PowerPoint presentations from the 2008 Rett conference.

Special needs education

We have added a new page to the website: Support. The first piece we are including on this page is about rights to education by Fiona Rammel.