Welcome to the website of Rett NZ

This website provides information and support for families affected by Rett syndrome.

You will find here information about Rett New Zealand, a brief description of Rett syndrome, links to current research and links to other useful sites. We have also added a page for personal stories and other contributions for families to share their experiences.

Search website:

Forums

Join us at our forums and share your thoughts, advice and worries. You can find the forums here. For more information about the forums and how to use them, go to this page.

Send us an e-mail

Do you have any comments or questions about Rett syndrome? Please send us an e-mail at rett.info@nzord.org.nz.

Find us on Facebook.

News & Updates

See all News & Updates

New Zealand initiative being trialled with Rett girls in Houston

Neuren completes NNZ 2566 oral phase I  safety study and files IND for Rett syndrome (pdf file)

NNZ-2566 was developed from a drug discovered by Prof Margaret Brimble at Auckland University. It has been used for the rehabilitation of soldiers returning with traumatic head injury from the war in Afghanistan. The trials on mice were encouraging so now it is going to be trialled on girls over eighteen years of age in Houston. The drug is also going to be trialled with those who have Fragile X soon.

Treating Synaptic Dysfunction

An interesting article on the Rett Syndrome Research Trust Blog:

Treating Synaptic Dysfunction

Girls With Rett Syndrome Find Their "Voice" In Eye-Gaze Technology

Cognitive Abilities of Rett Syndrome Patients have been Underestimated for Decades

A study has found that Rett syndrome is often confused with autism and needs better assessment.

Read more

Breaking news

Research has found that a bone-marrow transplant can treat mice with a version of Rett syndrome:

Read the announcement

Conference dates

Note that the dates for the 2012 conference are 11–13 May, not 12–14 May as previously reported.

The conference will be in Auckland and will feature

  • Susan Norwell is to return with latest communication ideas
  • Specialists to answer your questions
  • Setting up a trust for your child

Rett Syndrome: Therapeutic Interventions

A new book, recommended by Kathy Hunter: Rett Syndrome: Therapeutic Interventions

RSRT Announces Latest Award Bringing 2011 Research Commitments to $3.6 million

Finding Good Apps for Children With Autism

See all News & Updates