Welcome to the Website of Rett New Zealand

This website provides information and support for families affected by Rett syndrome.

You will find here information about Rett New Zealand, a brief description of Rett syndrome, links to current research and links to other useful sites. We have also added a page for personal stories and other contributions for families to share their experiences.

Facebook Group

Join us at our Facebook Group and share your thoughts, advice and worries.

Send us an e-mail

Do you have any comments or questions about Rett syndrome? Please send us an e-mail at rett.info@nzord.org.nz.

2014 Rett New Zealand Conference

Out and about at the 2014 conference at Ellerslie, Auckland.

Look who supports Rett Syndrome

Julia Roberts became committed to helping find a cure for Rett Syndrome after meeting Abigail Brodsky, a young girl battling the disease. Julia appeared in the Discovery Channel's Silent Angels: The Rett Syndrome Story and testified before Congress about the need for more research on the crippling neurological disease.
Rose Hill Designs: Believe in a Cure
Illustration by Heather Stillufsen

Latest News

March 9 2015

News about NNZ2566

We have been reading about the FDA decision on NNZ2566.
Here is some expert advice from the International organisation
March 9 2015

MY daughter is a different kind of perfect

A Mother's tribute to her daughter
December 6 2014

Teaching Rett Girls

Tips for teaching Rett girls
November 12 2014

Successful Clinical Trials for Prof Margaret Brimble's NNZ2566

Neuren Pharma: Optimistic results of the drug NNZ2566
September 7 2014

A new clinical trial increased head circumference but did not lessen symptoms

An Italian trial showing some hope but not lessening the symptoms.
September 7 2014

Ipad apps for our girls

IPAD APPS recommended by Rett Parents
September 7 2014

Language Through Motor Planning

Interesting site with ideas for Motor Planning for non verbal children
September 5 2014

Music Therapy

The advantages of Music Therapy from the Music Therapy Centre of California. This article would be helpful for parents and teachers.