News & Updates
New Zealand initiative being trialled with Rett girls in Houston
Neuren completes NNZ 2566 oral phase I safety study and files IND for Rett syndrome (pdf file)
NNZ-2566 was developed from a drug discovered by Prof Margaret Brimble at Auckland University. It has been used for the rehabilitation of soldiers returning with traumatic head injury from the war in Afghanistan. The trials on mice were encouraging so now it is going to be trialled on girls over eighteen years of age in Houston. The drug is also going to be trialled with those who have Fragile X soon.
Treating Synaptic Dysfunction
An interesting article on the Rett Syndrome Research Trust Blog:
Girls With Rett Syndrome Find Their "Voice" In Eye-Gaze Technology
Highlight of Susan Norwell's talk!
Girls With Rett Syndrome Find Their "Voice" In Eye-Gaze Technology
Cognitive Abilities of Rett Syndrome Patients have been Underestimated for Decades
A study has found that Rett syndrome is often confused with autism and needs better assessment.
Breaking news
Research has found that a bone-marrow transplant can treat mice with a version of Rett syndrome:
Conference dates
Note that the dates for the 2012 conference are 11–13 May, not 12–14 May as previously reported.
The conference will be in Auckland and will feature
- Susan Norwell is to return with latest communication ideas
- Specialists to answer your questions
- Setting up a trust for your child
Rett Syndrome: Therapeutic Interventions
RSRT Announces Latest Award Bringing 2011 Research Commitments to $3.6 million
Finding Good Apps for Children With Autism
Finding Good Apps for Children With Autism (NY Times)