Welcome to the website of Rett NZ

This website provides information and support for families affected by Rett syndrome.

You will find here information about Rett New Zealand, a brief description of Rett syndrome, links to current research and links to other useful sites. We have also added a page for personal stories and other contributions for families to share their experiences.

Search website:

Forums

Join us at our forums and share your thoughts, advice and worries. You can find the forums here. For more information about the forums and how to use them, go to this page.

Send us an e-mail

Do you have any comments or questions about Rett syndrome? Please send us an e-mail at rett.info@nzord.org.nz.

News & Updates

See all News & Updates

Rett Syndrome: Therapeutic Interventions

A new book, recommended by Kathy Hunter: Rett Syndrome: Therapeutic Interventions

RSRT Announces Latest Award Bringing 2011 Research Commitments to $3.6 million

Finding Good Apps for Children With Autism

Finding Good Apps for Children With Autism (NY Times)

Rett Chair Letter Sept 2011

Mark Campbell Chair: Looking back and looking forward September, 2011

Salk Institute - Press Releases - Rett syndrome mobilizes jumping genes in the brain

Dr Libby Caygill writing from Cambridge has drawn our attention to this interesting and exciting research.

A date for your diary

2012 Conference dates 12–14 May in Auckland.

Susan Norwell is to return with latest communication ideas
Specialists to answer your questions
Setting up a trust for your child

Start Strong

Rett NZ with various other organisations support IHC's Start Strong co-ordinated campaign to help children with disabilities from their earliest diagnosis.

New research

Research identifies a role for glia (a type of brain cell) in the progression of Rett Syndrome – read the press release and interview with the researchers

Fragile X and Rett Syndrome – Opposite Ends of the Bell Curve?

Fragile X and Rett Syndrome – Opposite Ends of the Bell Curve? – a conversation between two scientists leads to exciting new research...

Introducing Our Newest Rett NZ Ambassador, Mr Haemish Crawford

Mr Haemish Crawford, our new ambassador. Rett NZ is honoured to announce that Mr Haemish Crawford, one of New Zealand’s leading orthopaedic surgeons has agreed to become an ambassador for Rett NZ.

Haemish spoke to families at the Rotorua conference and has given so many of them comfort as they anticipate the scoliosis surgery for their daughters. Haemish believes there is an optimum time to halt the curvature of the spine. RettNZ acknowledges Haemish for his fine intelligence, his skills and his care in looking after their families.