Welcome to the website of Rett NZ

This website provides information and support for families affected by Rett syndrome.

You will find here information about Rett New Zealand, a brief description of Rett syndrome, links to current research and links to other useful sites. We have also added a page for personal stories and other contributions for families to share their experiences.

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Forums

Join us at our forums and share your thoughts, advice and worries. You can find the forums here. For more information about the forums and how to use them, go to this page.

Send us an e-mail

Do you have any comments or questions about Rett syndrome? Please send us an e-mail at rett.info@nzord.org.nz.

Our sponsors

Deane Endowment Trust
Hayley Brown

Tepuke Citizens Group
Steve Williams Foundation logo. Toll logo. O M Financial logo. Trelise Cooper logo. DB logo. Bank of Queensland logo. Giltrap Group logo. A1 Team logo. KPMG logo. Interislander logo. Toll Tranzlink logo.

News & Updates

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Rett syndrome fact sheet

For a very good coverage of information on Rett syndrome, check out the NINDS fact sheet.

2010 Conference – Memorable

Read about our 2010 Conference

Annual report and annual accounts

Susan Norwell available for consultation

Susan Norwell, a communication specialist working with non verbal children, will be visiting Auckland, Hamilton, Taupo, Palmerston, Wellington and Christchurch after the conference and is available for a short appointment with you and your daughter.

View Susan's schedule

New story

Christy's Story by her mother Lia

Rosie Marks on Family Care Radio

In February 2009, Rosie Marks spoke to Family Care Radio about her work and the issues faced by those she help.

Open Family Care Radio player

Duration: 18 minutes

What Went Right in the Brain

At the Parent Gathering 2009 at the Rett Syndrome Center, Aleksandra Djukic gave a very interesting talk called What Went Right in the Brain.

Watch the talk on Youtube

My visit with Susan Norwell

Karly writes about meeting Susan Norwell in her blog.

Our thoughts are with Ashi's family

The Right to See

Your ophthalmologist can provide a simple test for refractive errors in the eye. Read more.

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