Search
Welcome
Fundraising
Dr Phil Parmer, who has recently written an in-depth reflection on his granddaughter Evie, is raising money for the UK Rett Association and for Rett NZ by cycling from London to Paris.
Visit Phil's Parmers fundraising page
This website provides information and support for families affected by Rett syndrome.
You will find here information about the New Zealand Rett Syndrome Association, a brief description of Rett syndrome, links to current researchand links to other useful sites. We have also added a page for personal stories and other contributions for families to share their experiences.
Forums
Join us at our forums and share your thoughts, advice and worries. You can find the forums here. For more information about the forums and how to use them, go to this page.
Send us an e-mail
Do you have any comments or questions about Rett syndrome? Please send us an e-mail at rett.info@nzord.org.nz.
Our sponsors
Deane Endowment Trust
Hayley Brown
Tepuke Citizens Group
Recent Updates
A grandparent's reflections
Dr Phil Parmer shares his reflections on Rett syndrome as a grandparent.
New drug to be trialled
A new drug is to be trialled to treat the root cause of autism in Rett syndrome. See the Current Research News section for more details.
Amy's Life
Just in time for Christmas we have added a special story about Amy and her gift of an Inky Dinky saddle from Variety.
New website
We have added Kathy Hunter's website Retthelp.info to the Links page.
Essay
Victoria Low, Gabriella's sister, has written a excellent essay (pdf) for her Otago U. neuropharmacology course on the overestimate of the incidence of epilepsy in Rett syndrome. Read more research news on our Current Research News page.
Our ambassadors
We highlight the work that our ambassadors Mike McRoberts, Dr Mike Sullivan and Anna Stanley are doing for Rett NZ and express our gratitude for their work on the our ambassadors page.