Welcome to the website of Rett NZ

This website provides information and support for families affected by Rett syndrome.

You will find here information about Rett New Zealand, a brief description of Rett syndrome, links to current research and links to other useful sites. We have also added a page for personal stories and other contributions for families to share their experiences.

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Forums

Join us at our forums and share your thoughts, advice and worries. You can find the forums here. For more information about the forums and how to use them, go to this page.

Send us an e-mail

Do you have any comments or questions about Rett syndrome? Please send us an e-mail at rett.info@nzord.org.nz.

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News & Updates

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Cognitive Abilities of Rett Syndrome Patients have been Underestimated for Decades

A study has found that Rett syndrome is often confused with autism and needs better assessment.

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Breaking news

Research has found that a bone-marrow transplant can treat mice with a version of Rett syndrome:

Read the announcement

Conference dates

Note that the dates for the 2012 conference are 11–13 May, not 12–14 May as previously reported.

The conference will be in Auckland and will feature

  • Susan Norwell is to return with latest communication ideas
  • Specialists to answer your questions
  • Setting up a trust for your child

Rett Syndrome: Therapeutic Interventions

A new book, recommended by Kathy Hunter: Rett Syndrome: Therapeutic Interventions

RSRT Announces Latest Award Bringing 2011 Research Commitments to $3.6 million

Finding Good Apps for Children With Autism

Salk Institute - Press Releases - Rett syndrome mobilizes jumping genes in the brain

Dr Libby Caygill writing from Cambridge has drawn our attention to this interesting and exciting research.

A date for your diary

2012 Conference dates 11–13 May in Auckland.

  • Susan Norwell is to return with latest communication ideas
  • Specialists to answer your questions
  • Setting up a trust for your child

Start Strong

Rett NZ with various other organisations support IHC's Start Strong co-ordinated campaign to help children with disabilities from their earliest diagnosis.

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