About Us

Rett New Zealand is an informal support group providing advice for families and therapists dealing with the complex symptoms of Rett Syndrome. We strive to share the love, acceptance and understanding of other families facing the same daily problems.

We also work closely with overseas groups who have funding for detailed medical research. In New Zealand we work on various research projects with Dr Michael Sullivan at the Christchurch School of Medicine.

Read about our ambassadors Mike McRoberts (our patron), Mike Sullivan, Anna Stanley and Rob Pakes.

Charities Commission Register No. CC11016

RettNZ Charitable Trust Charter

Annual report 2010 (MS Word document) – annual accounts (pdf file)

Annual report 2009 – annual accounts (pdf file)

President's report 2006–7 (MS Word document)

Minutes of Rett NZ meeting at Rydges Hotel in Rotorua, Sunday 29 October 2006

Our Trustees

Mark Campbell – chairman
Gillian Deane – national coordinator
Doug Laing – treasurer
Dugald MacBrayne – projects coordinator

Contact details

Rett Syndrome Association
Postal address: PO Box 28 049, Wellington
Phone: 04 475 9265
About_Us