Nikky van Rooyen

August 30 2016
Robert and Margaret and their lovely children are in our thoughts as brave Nikky slipped away yesterday afternoon. In 1997 the van Rooyens organised a wonderful day where we all got together to meet a Swedish Rett expert who had worked with Dr Hagberg who was one of the co-authors of the original papers on Rett. Yvonne posted a photo from that day a little while ago on facebook. Robert had been to Zjuska's memorial day on Saturday. Rett parents know how others are feeling at this very sad time...
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Interesting observations from Prof Mike Dragunow from the Brain Research Group at Auckland University

August 24 2016
I was reading about a signaling pathway that Harvard stem cell scientists were working on to correct a faulty signalling pathway in Rett. Mike replied explaining how the ground breaking work in Auckland relates to aspects of this research. Mike writes"Interesting article. We don't study the particular pathway ourselves directly but the "antennae" that they are talking about are the dendritic trees that the neurons have. In developmental disorders and also in the aging and diseased (Alzheimer's) brain these "dendritic arborisations" (much like the large, small and very small branches of a tree) become less developed and ...
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Thinking of Yvonne this week

August 22 2016
It is hard to believe it is a year since Zjuska left us. We will be thinking of Yvonne and her family thinking of all that Zjuska meant to us all and how much she enjoyed her wonderful family...
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A new family

August 17 2016
We are all feeling for the new family who have become part of our NZ Rett family. We all remember how difficult it is when we find out the reason we have been noticing the difference in the behaviour of our girls. ...
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Dugald and Gillian Visit Distinguished Professor Margaret Brimble's Lab

August 10 2016
Margaret invited us to visit her lab to meet some of her very clever staff who she worked with which was exciting. Dugald being an engineer followed the complexities of the lab equipment with great interest. It was an honour for Margaret to share her valuable time and introduce us to the other brilliant people she works with. They made us so welcome. We came away feeling inspired...
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A generous gift from Distinguished Prof. John Weaver & Joan Weaver

August 10 2016
John and Joan Weaver are Canadians who love visiting New Zealand. They learnt about Rett Syndrome whilst visiting us and made a generous donation to help with a special project for Rett NZ. They were very excited about Susan Norwell's work teaching the girls to read and write. Many thanks to Joan and John.. we will let you know about the special project we are thinking of. ...
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