Look also on the Research, News and Personal Stories pages for more specific links.

International Rett Syndrome Foundation

The International Rett Syndrome Foundation has an excellent website with all the best information and is fully up to date on medical, research and practical help. (Note that the International Rett Syndrome Foundation was formed in July 2007 when the International Rett Syndrome Association and the Rett Syndrome Research Foundation merged.)

RetHelp.info

Kathy Hunter has created her own page to support the international Rett syndrome community, RettHelp.info. Kathy's site brings together a wealth of advice and guidance, both from her own experience and knowledge and from renowned experts in Retty syndrome.

InterRett

InterRett, or the International Rett Syndrome Database, is a project gathering information and creating an online database about individuals with Rett syndrome for use in research on the clinical features and genetic charastics of Rett syndrome. The AussieRett, or the Australian Rett Syndrome Study, is the Australian study.

Online Medilian Inheritance in Man

The Online Medilian Inheritance in Man database of genetic disoders has a very scientific treatment of Rett syndrome, complete with references to papers in medical journals.

National Institute of Neurological Disorders and Stroke

The National Institute of Neurological Disorders and Stroke (USA) offers a fact sheet with a good coverage of Rett syndrome information.

Halburg Trust

We would like to express our support for the Halberg Trust. The Halberg Trust aims to support all children with a disability who want to be involved in active leisure or recreation alongside their peers in an inclusive environment. The Halberg Trust Activity Fund provides grants to young people living with a disability who want to be involved in sport and leisure – this can be equipment or lessons for example swimming lessons, tennis lessons, customized trikes, trampolines etc.

Focused Learning Solutions

Susan Norwell runs a company Focused Learning Solutions dedicated to learning for children with significant disabilities.