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Conference 08
Momentum Conference was a great success, with the attending families unanimous in their approval of the two international speakers who updated them on the latest developments in Rett syndrome.
Prof John Christodoulou, an outstanding Australian geneticist and Rett researcher, gave presentations on his research and his Rett clinics at Westmeade Children's hospital. Kathy Hunter, founder of the International Rett Association, gave an afternoon of wonderful advice to parents with many practical suggestions for coping with the day to day challenges of living with Rett girls. Helping to make parents aware of their rights were Trish Grant, Adocacy Manager for IHC, John Forman. Executive Director of the NZ Organisation for Rare Diseases and special education teacher Fiona Rammell. Four fathers talked about the special relationship with their Rett daughters in a forum called Daddy's Girl. The conference was summed up by Rob Pakes, John Forman and Gillian Deane.
Speakers' bios
Click the links below to read the bios of the speakers:
Rob Pakes | Kathy Hunter | John Christodoulou | Trish Grant | John Forman | Fiona Rammell | The chaps' panel
Presentations
The presentations in this section are Microsoft PowerPoint slide shows. They can be viewed with Microsoft PowerPoint, PowerPoint Viewer, which can be downloaded at this link, or OpenOffice Impress. To view the presentations, right click on the link and save the file to your computer; then open the file with PowerPoint, PowerPoint Viewer or Impress.
- Kathy Hunter
- Prof. John Christodoulou – A Huge Leap Backwards, Then Small Steps Forward: Profile of a Rett Syndrome Multidisciplinary Management Clinic
- Prof. John Christodoulou – Rett Syndrome Research: The Sydney Experience
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Prof. John Christodoulou – Lessons from the Mouse: Rett Syndrome is Potentially Treatable
This presentation includes four pieces of video that may not display in the slide show. The videos can be downloaded seperately here:- White and brown mice (mpeg format)
- Before (QuickTime format)
- After (QuickTime format)
- Three mice (QuickTime format)
- Rob Pakes – Rett New Zealand 07–08: A Year in Review
- Scott Hunter
- Trish Grant – IHC
Photos
Catherine and John Christodoulou
Riona Rammell, special education teacher
Kathy Hunter, founder of IRSA
John Forman, Executive Director NZORD
Trish Grant, Director of Advocacy IHC
The Chaps Forum: Mark, Rob, Bill, Scott
John, Rob, Gillian, John, Kathy, Mark, Doug, Bill
Trustees: Rob, Gillian, Mark, Doug
Megan and Rob
Dugald and Christine MacBrayne
Doug Laing, Treasurer
Bill Callahan, President Australian Rett Association
Attendees
Attendees
Attendees