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Rob Pakes a new Rett NZ ambassador

Rob Pakes. Rob Pakes is our new Rett NZ ambassador. After leading Rett NZ as its first president Rob is using his infectious talent for publicizing Rett Syndrome in this new way. Rob and Megan’s fundraising and raising awareness for families is appreciated by all members and supporters of our group. Rob’s report of Megan and his time at the International IRSA conference in California is in the Report Section on the website. We thank Alysha for being Megan and Rob’s inspiration. We will be sending details of how you can vote for Rob and Rett NZ in next year’s Kiwi Battler competition.